Amelia Grace Johnson
Amelia Grace Johnson, 4, Shawnee, Kansas, passed away unexpectedly at Children’s Mercy Hospital on Wednesday, March 16, 2011.
Amelia is survived by her parents Shawn and Tracy Johnson and a sister Libby.
Memorial Visitation
Visitation will be 2-4 p.m., Saturday, March 19, 2011 at the Amos Family Chapel of Shawnee.
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Shawn, Tracy & Libby-We are all thinking of you and saddened in your loss of Mia. You are in our prayers.
We are so very saddened by Mia’s passing and realize nothing we can say will make it better. But please know we are thinking of you and praying for you and will be there in whatever way you need.
Tracy, Shawn and Libby – My deepest condolences for your loss. You are all in my thoughts and prayers.
Dear Shawn, Tracy, & Libby, Mia was so blessed to have such a loving a wonderful family as you all. What an inspiration she was and always will be. Our thoughts and prayers are with you. Love, Danielle & Mathew Coates xoxoxo
Tracy-I’m so sorry to hear of your sudden loss of Mia. What a beautiful little girl and she was so lucky to have you and Shawn as her mom and dad. Please know that all of your friends from Epoch/Meritain are thinking of you.
All of my thoughts & prayers are with your family at this time.
Denice Clayton
My deepest sympathy to you and your family, Tracy. You are in my thoughts and prayers at this most difficult time.
Tracy,
I cannot imagine the depth of your grief, but please know that you and your family are in my constant thoughts and prayers.
Teresa
Tracy, I cannot image the loss you are feeling right now but you are in my thoughts and prayers. Amelia was so blesssed to have you as her her Mom and I know you were thankful for every moment with her.
I am very sorry to hear of your loss of Mia. You were very lucky to have her in your lives. Mia was also very lucky to have such a loving family. Remember the good times and she will always be in your hearts.
God Bless
Dan Arell
I am so sorry to hear about your loss. My thoughts are with you at this sad time in your lives. Take care and let me know if there is anything I can do.
Shawn, Tracy, Libby & friends and family: I am so sad for all of you. There are no words to express loss, only heart beats and tears. Know that we are truly so very sorry for the loss of such a beautiful little angel.. And you know the photos I have seen of Mia really look like the cherubs and baby angels. God bless and keep all of you. Terry Langford and family
Tracy,
My most heartfelt condolences go out to you and your family. I pray that God will grant you comfort, peace and strength during this time as only He can.
Tracy,
I don’t even know what to say. You are so strong and as all the others have said, I don’t know how you feel and can only imagine the devstation. You are in my thoughts and prayers.
Carolyn
Tracy, we are all so very sorry to hear about your loss. Our hearts and prayers go out to you and your family.
My deepest sympathy to your and your family. Please know that you are in our thoughts and prayers.
Carol
Our hearts go out to you in your time of loss. We love you both very much.
Shawn
My heart goes out to you and your precious family. Know you are in my prayers.
Tracy, Shawn, Libby, Donna, and family – My thoughts and prayers are with you.
Shawn, Tracy, Libby and Donna, God’s continued blessings as you celebrate the young life of Mia. She lives on lovingly embraced in your hearts and memories. Know that your family is being supported in prayer by me and so many others. Love to you. Keep lookin’ up! —Stephanie Bland
Shawn, Tracy & Libby, we are so sad to hear of your loss of Mia. We can’t imagine your grief and have you in our thoughts and prayers. If there is anything we can do to help please let us know.
I am so sorry in your loss of your sweet baby. She is with Jesus, and you will see her again one day. She’s not gone forever. In my thoughts and prayers
Dear Tracy, Shawn, Libby and Family,
We are so saddened to hear of the loss of your beautiful daughter, Mia. Wishing we could find words to ease your pain and give you comfort but they are hard to find at a time like this. Please know that are hearts are aching for your family and that you will be in our thoughts and prayers. You have our sincere condolences and sympathy. The McCall Family
Shawn, Tracy & LIbby,
My heart pours out to you. Many prayers and love today and for tomorrow. Much love, jenn nussbeck
Shawn, Tracy, Libby — please know that our hearts go out to each of you in the loss of your beautiful daughter/sister. Remeber she will always be looking down on you and giving you strength in hard times and laughing with you in good times.
Mia is the sunlight on ripened grain, the gentle autumn rain, and the soft stars that shine at night.
Tracy – Keeping you and your family in my thoughts and prayers during this difficult time. Love to you – Kelley
Tracy – Your family has my deepest condolences. You will be in my thoughts and prayers.
Tracy and Shawn,
I was so sad to hear of Mia’s passing last week. She was such a delight to have in class. We never knew from one moment to the next what to expect from her. She always let us know if something was not to her liking. I will miss her very much and want you to know that my prayers are with you and I know that Mia is with God. She was an angel on earth.
Mary Jones
There are no words that I can say, when your child goes to haven before you. No matter how old they are they’re still your little one. We might not know why. But God does and he will give you strength to go on. My heart and prayers are with you Tracy, and your loved ones.
I was so sorry to hear of little Mia, my heart goes out to you and your family Tracy, from one CDKL5 family to another.
God bless little angel. xx
I am so sad to hear that your sweet little Mia has passed away.
There are no words that can express how hard and unfair this is.
You are in my thoughts, and in my prayers.
May Mia for ever live in your hearts, and in our memories.
All my love to your whole family.
Aina – mum of Vegard (CDKL5) – Norway.
We send you all our warmest and deepest thoughts at such a cruel and hard time. We feel your pain and saddness and hope one day you will all find a inner peace and calm once again. All our love from another CDKL5 family to another xx
The entire CDKL5 family is crying with you today. We are all shocked and saddened with the loss of Mia. Please know you and your family are in all of our thoughts and prayers.
Shawn & Tracy,
Dania and I wanted to extend our sincere condolences to you both during this difficult time. We were so sorry to hear about Amelia, but we also know that she is now in a better place. We want you both to know and take solace in the fact that due in part to your family’s situation with Amelia, we’re much better informed about how important it can be to preserve placental tissue if and when we have children of our own. Your family is in our prayers, and we hope that you find comfort in the support of family and friends while you grieve. God bless you all. –Patrick & Dania
Tracy, Shawn and all Family
As a CDKL5 little girl´s parents, in this moment of pain, we want to sent you a big hug of courage and faith.
Think in all hapiness, beauty and special moments that Amelia provides you.
Our little babies are truly special and we are all blessed to have them.
All of your familiy are in our hearts and thoughts.
Miguel and Cristina , parents of Maria Miguel (CDKL5)
Shawn, Tracy, & Libby,
Words cannot express how sorry I am for the loss of Mia. I pray for peace and comfort for you and your family.
Diana, mom of A.J. (CDKL5)
Shawn & Tracy,
We were so sorry to learn of Mia’s passing. Our thoughts and prayers are with both of you and your families. I wish we could have been there, but, we were out of town and just returned. If there is anything we can do for any of you, do not hesitate to call.
Fred & Shirley Douglas
Tracy, Shawn and Libby – I am so very sad about the passing of Amelia. Thoughts and prayers to you and your entire family.
Please accept my heartfelt condolences for your loss. Just know that our hearts, thoughts and prayers are with you in this most difficult of times.
fly high little angel Mia!
Gabriela (mom of Julia CDKL5)
We are so sorry for your loss. Please keep praying to God, he will grant you comfort. It was not God’s purpose for us to die, but to live forever. “Jehovah (God) is near to those that are broken at heart” – Psalm 34:18. We will keep your and your family in our prayers.
Hey sweet girl,
Daddy loves you and misses you so much. I know life has to be easier for you now, but a ma and a da struggle at times trying to understand. Sissy misses sitting with you and watching your favorite shows together.
We think about you always and pray that you will be waiting for us.
I Love You, A Da.
Happy 5th Birthday Sweet Girl.
Hope you received our messages.
Everyone misses you dearly.
I Love You,
Daddy.
It’s been 6 months today little girl.
Our “New Normal” is getting easier to take, but we still have our bad days. I know you’re not suffering any longer, but we still do because we miss you so.
We will always miss you not being with us.
Continue to fly high sweet girl.
I Love you So much,
A Da.
Dear Mia,
I love you soo much! How is it up there? Have you met Nana & Aunt Dot? What about Grandma Millie? I sure miss you but I’m glad you are having fun and doing things new. I’m sorry I didn’t come to say my good byes! I was just looking at photos of you. Did you feel trapped when you were here with us? Now that you went somewhere else happy it just dawned on me that you weren’t living a good life. I’m trying to start a charity to help kids like you. Mom is volunteering by helping kids like you. See you sooner than later Mimi. Pomma and Poffa still have some formula from when you had feeding tube spills. Please watch over me if you are not. Madi has two twin baby sisters that I adore. Lots of people I didn’t know came to your funeral. That was kind of weird. Well, I love you and I was just checking on you. Love Sissy.
Well little one, you would have been 6 years old now. Happy Birthday! I honestly do not know how long it will take before a Saturday night can come without me thinking about how much fun we had and how much I want you to be with me again for another Saturday sleep over. Please keep some energy for when I get to come there and be with you. I want to run and jump and play with you so badly. I love you and so wish I could have taken your place. The world here would have been so much nicer with you in it.
Hi Baby Girl! I wanted to tell you that Libby had her Birthday party last night. She is twelve years old! I held you in my heart all evening so that you would be a part of the festivities. I know we can’t be together yet but you should know that we are never apart. I love you and miss you so very much. There was a photo taken of you and your Mom and Dad, Libby, Andrew, Bridget and Madi by a bridge. It was a Christmas present for Poffa and me. In that photo I looked at your sweet little face and I am so happy that you can run and play and be free of all the bad things that held you down here. I want so badly to give you one more hug and kiss. A little later I’ll be able to.
MeMe, Merry Christmas! Uncle Duke joined you this month, so your family there is growing. We all miss you and love you so very much! I promise you are never very far from our thoughts and love. Pomma
Well little angle it is the second anniversary of your independence. Your Daddy said it best, this “new normal” with out you is what we deal with here and you no longer have the restraints that held you down while you were here with us. As time passes, your family there will grow bigger as we all will shift from here to be with you there. I wonder if time has the same heart beat there as it does here? It seems like the two years has been so long ago but in so many ways it was almost like last week. I still remember the smell of the vanilla that the liquid we feed you had. Sweet baby please know how much you are loved every day and that I am joyous that you’re not suffering. I will admit that my days were happier when you where with us here, but I can’t be so selfish to want you to have to endure what it was like before. So, I wanted to tell you how much I love you and how your are so very much missed. Have fun today and everyday with everyone there but save a tiny bit of fun for us to enjoy together.